Tuesday, January 18, 2011
Doctor Update
We saw Dr. Regehr yesterday and the report was good. The results from her Upper G.I. showed that she does have severe reflux, that combined with the severe laryngomalacia explains why Ashley had been so upset and in so much pain. She has been much happier with the reflux medicine she's been taking so the doctor was encouraged by that. The G.I. test also showed there was no narrowing and no blockage so there was no immediate need for surgery. The report from the apnea monitor she has been on apparently showed two alarms for low heart rate, one was the first day we used it and the other was yesterday morning. I was surprised because I do not recall the machine alarming for anything but loose leads. However, this morning it alarmed again for low heart rate. We're going to make sure that the machine is working correctly and hope that this is not an issue for her. The doctor still talked about surgery, he said most children will grow out of the laryngomalacia between one and half to three years! So, at this point he wants to give her time to grow and will see her back in 3 months. A couple of concerning things he did add is that the reflux could still be an issue even after her voice box is developed and that we should continue doing the apnea monitor because a child with laryngomalacia is at a higher risk for SIDS. I have already worried about this and now I have even more reason to worry! Thankfully we do have the monitor though. We are thankful for these doctors and pray that Ashley will continue to improve each day.
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